This is our sweet boy, Isaac! You can see how precious he is & how much is needed to keep him alive right now.
Here is his room at the PICU of UNC Childrens Hospital.
Much has occurred since our last post. Jordan & I met with Dr. Mill & part of his team yesterday to discuss the full details of tomorrow's surgery, as well as clarify the diaphragm condition. Isaac has an eventration (raising & thinning) of the central tendon of his diaphragm. This means he's not able to pull down deep breaths on his own. There is a test that can be done to measure the severity of this, but with his weak condition & impending surgery, they've decided to wait until recovery to address the diaphragm issue. Two possible treatment options should he need it are to placate the diaphragm, which means to stitch it down so that the whole functions more properly - this is done on small eventrations. The other is to put in a tracheotomy for an unclarified amount of time. All that said, his diaphragm condition does not jeopardize surgery. It does however decrease the overall success rate from 70-75% to 50-60%. So please pray! God can do miracles & we're asking him to correct the eventration of Isaac's diaphragm.
Today has held many bumps in the road. Isaac has had several episodes of hypoglycemia, as well as surges in lactic acid (indicating his body is working overtime to function) & random, severe drops in his oxygen saturations. Labs have been drawn throughout the day to try & clarify what is going on, but so far it remains unknown. Doctors are trying to determine this cause - whether infection or change in the heart or something else. Please pray as proceeding with surgery tomorrow pends on what is causing these influctions. It has been scary at times, not knowing the root of these changes. Jordan & I keep reminding ourselves that nothing is a mystery to God & when we walk through the fire, He IS THERE with us!
Isaac goes in to surgery at 7am. The operation will take 5-6 hours if there are no complications. Once he is under anesthesia, all necessary additional lines put in, he will be opened & put on full heart & lung bypass. Once his body temp has cooled to the designated temperature, Dr. Mill will proceed with the Norwood Procedure (see previous blogs for details). At the end of the operation, he will decide whether to close Isaac's chest then or wait a few days for swelling to go down. If the ribcage is closed prematurely, pressure from the swelling will compress the heart, causing failure. Finally, he'll be cleaned up & sent to recovery. The first 48 hours is the most critical, allowing only for parental visitation during this time.
This is a huge surgery! Please be in prayer for our sweet boy! It seems today as though he is under attack, with so many random things coming against him & trying to compromise this life-saving surgery. But we rest in the knowing that all of Isaac's days were ordained for him before there was yet one! (Psalm 139) He is fearfully & WONDERFULLY made! GOD knit him together in my womb & His plans for Isaac are good, for a hope & a future, filled with blessings & not cursings. (Jeremiah 29.11) Who can know the mind of God & who can understand His thoughts? For His ways are HIGHER than our ways & His thoughts HIGHER than our thoughts! (Isaiah 55) In You, O Lord, do we lift up our souls & in You do we trust - our selves & our sweet boy in your Hands. No one whose hope is in You will EVER be put to shame. ALL the ways of the Lord are loving & faithful for those who keep His covenants. (Psalm 25) The Lord is our light & our salvation; whom shall we fear? The Lord is the stronghold of our lives; of whom should we be afraid? We are confident in this - that we will see the GOODNESS of the Lord in the land of the living! (Psalm 27) For we are convinced that neither death nor life, neither angels nor demons, neither the present nor the future nor any powers, neither height nor depth nor anything else in all creation will EVER be able to separate us from the love of Christ! (Romans 8)
No matter what tomorrow brings, God is in control! He has ordained Isaac's days & holds him in perfect keeping the mighty palm of His hand. We will lift our eyes to the hills for there our help comes; it comes from the Lord who made heaven & earth. God, You are in control! While fear & death loom around the corner, our eyes remain fixed on You. You have created Isaac with a purpose & just as Abraham laid his son at Your feet, we lay our son before You - trusting that You will provide!