The sun is shining amidst a Carolina Blue sky here in Chapel Hill. Isaac & I have enjoyed a wonderful morning, listening to worship albums by Lincoln Brewster & Hillsong United. Bringing a bit of C3 to our room here at the PICU. :) The days are slow & steady as Isaac makes progress towards recovery. At times, I find myself impatient, wanting to hold him now & bring him home. But it is in those times of waiting & bringing my tears before the Lord that He provides just the strength needed to make it through. Its a day by day process. Psalm 16.8-10 reminded me of His promises this morning: "I have set the Lord always before me. Because He is at my right hand, I will not be shaken. Therefore my heart is glad & my tongue rejoices; my body will also rest secure because you will not abandon me to the grave." The Lord continues to remain faithful & true to His Word. Jordan continues to provide strength & peace for our family when fatigue & emotions wear me down. He has been amazing through this whole journey & I praise the Lord every day for blessing me with such a remarkable man for my husband & loving father to Isaac.
Here's where we are in Isaac's recovery::
At this point, they've been able to pull him off of the blood pressure medication as he's holding steady on his own. He is no longer third spacing his fluids & has been able to get rid of a good deal of fluid. He still needs to dry out a bit more so that his lungs aren't wet for extubation. They're in the process of weaning him from the ventilator, slowly decreasing the rate at which air is being pushed into the lungs to teach his diaphragm to pull it in on its own.
How to pray::
The most crucial areas at this point concern his diaphragm & ability to get off the ventilator. He's been intubated since birth, so his lungs have not yet needed to do the work fully on their own. As mentioned before, he has an eventration (doming) of his diaphragm, making it difficult for him to pull down full on his own to bring in deep breaths. The severity of this condition is still undetermined & will remain so while on the ventilator. The last echo done on his diaphragm did not show as severe an eventration as we thought, however this is inconclusive as air was still being pushed into the lungs by the ventilator. Some good news though - when they took him off the vent system briefly, he responded by moving his diaphragm a bit on his own.
So please continue to pray for healing of this eventration & strength for Isaac as he learns to breathe on his own. This is a major hurdle towards being able to bring him home. The goal at this point is to extubate within the next 48-72 hrs is everything remains steady. Once extubated, we'll be able to fully assess his diaphragms condition. Also, pray his blood pressure remains steady without assistance from the Dopamine. These are the major hurdles at this point. Thank you for your prayers!