The reports have come in for Isaac's genetics labs, both the FISH test & full chromosomal work-up. It's official...everything came back NORMAL!!!!! No DiGeorge, no deletions, no duplications, no problems whatsoever! Hearing the news, we felt as though a huge burden had been lifted from our shoulders that we weren't even aware was there. God had given us peace through the waiting & now we can rejoice in the knowing that everything's fine. Thank you, Lord, for your faithfulness. How true You are to Your Word, giving peace amidst the raging sea through the long night, waiting for the shoreline to appear. No matter how dark the storm, the sun's warmth will always shine through in the end. Praise be to our God for this good report!
Isaac is in need of a new PIC line, a catheter port that goes to the heart through which meds & nutrition can be supplied. His first PIC line became infected just prior to surgery, so use of arterial lines & a femoral line in his hip have been used since surgery. His femoral line is now leaking, this being his second line at the site. His former arterial line needed to be removed due to the development of a leak/clot. They have made multiple attempts to put in new arterial lines & a PIC line, so that he can continue receiving the necessary meds & feeds. However, due to his size & fragility, all attempts thus far have not succeeded. A collection of pricks & bruises are all he has to show for these attempts so far.
Our sweet boy needs this PIC line severely - to have adequate access to administer meds, draw blood, give nutrition & to remove the exisitng femoral line which is failing & at high risk of infection due to the length of time which it has been in place. Please pray that the next attempt will be successful. Our next option should they fail again is to surgically create access for a PIC line, which would require more stitches. So please pray that God would open access for this line to be put in successfully.