Well, today has been a day of clarification. The morning began with Isaac in optimal conditions for extubation - vitals, nutrition, vent settings, the works. We were thrilled to see our sweet boy's face when they removed the tape & pulled out the ET tube. To see his whole face without tape or tubes...what a blessing! We must have kissed those sweet cheeks a hundred times! Isaac sailed through the first half hour, sating in the high 80's & holding a steady, comfortable heartrate. However, he was unable to cough on his own &, with the build-up of secretions in his lungs, began to tire quickly. In spite of suctioning & albuterol treatments, Isaac simply had to work too hard to breathe & grew too fatigued to clear his lungs on his own. So after nearly two hours, our sweet boy was reintubated & allowed to rest once more.
We are so proud of how well Isaac did, especially considering that he's been intubated for 9 weeks & his many issues (diaphragm, vocal chord, pharynx). He's certainly a fighter, never giving up even when its hard. Now we know for certain that a trach is the best & necessary option in moving Isaac towards recovery. He will head back to the OR on Thursday morning for the tracheostomy. Though this route is different than we had expected, we're happy to move forward in getting Isaac well enough for home. God remains faithful & even when His answer differs from our hopes, we still trust Him, knowing that He heard us & has greater plans in store. We now look ahead to surgery #5.
35 comments:
Thoose are beautiful pictures of Isaac. I'm still praying. God will be with you throughout the process.
Alli Tiner
Oh he looks so precious and peaceful with out all of those tubes. we pray often throughout the day for your sweet angel.
He's sooo beautiful!!! We will continue to pray him in to your arms and home to Clayton.
What precious pictures! What a blessing to have clarification and a direction. And how wonderful to be moving one step closer to going home! I will be praying for your family as always. My heart fills with joy as I see his sweet face, Patience. I know that seeing your sweet boys face today free of the tube must have filled your heart.
Love you all.
Lindsay
Oh, he is so precious! (I love the cheeks!!!) He is such a strong little guy. Love and more prayers,
Becky and Josh
He is so beautiful! Our prayers are with you all.
God Bless You,
Dianett & Sam
That is awesome!! We will continue to life Isaac up in prayer and can't wait for this journey to end for you guys so you can bring your sweet baby boy home!! :o)
Love & Prayers,
Bryant & Hilary
awww...what a handsome boy!
I've been checking in all day to see how things were going. Like you say - after nine weeks on a vent, Isaac did REALLY well breathing by himself for two hours. What a superstar! I know (as the mother of another little boy with HLHS) that things don't always go as planned, but at least when Isaac has his trache put in, you'll be able to see his beautiful little face all the time and it will be so much easier for you to cuddle him. Thinking of you and praying for you daily (many times a day, if I'm honest!)
With love and support,
Alison xxx
http://charlieturner.blogspot.com
WOW!!!!!
He is sooooooo beautiful!!! (ok, handsome) I know we've seen him all along, I know he's been gorgeous from the start, but that sweet face is beyond belief - God is mighty and amazing. You will never stop kissing those cheeks!
We love you guys and will keep praying!
-dell, steve, rushton and sam
What a beautiful baby boy. He looks so sweet and I would probably still be kissing those sweet cheeks. God will be watching over Isaac on Thursday as he has done thus far. Your faith has been wonderful and he has great things in store for all three of you. God Bless you all.
We Love you,
Jim & Carol
I just want to sqeeze those fat cheeks! What a gorgeous boy!
Praise God for His wonderful awesome work thus far. Baby Isaac looks so peaceful with what he's been thru - I know that is God's comforting arms around him. Thank You God for the awesome works You've been doing, for the total control You have over this family. I pray that You continue to touch the three of them as time goes by ... continue touching them with Your Great Love, Your peacefulness and All of the many blessings you so abundantly shower over them. I pray for Thursday's surgery - that You are there guiding the doctors as they perform the trach procedure. That You comfort Isaac from any pain and comfort Patience & Jordan during the wait. And Lord, I pray that they will soon get to be at home as a family; that they can just sit back with baby, enjoy the parenting role that you've blessed them as they shepard Your Child into a Warrior for God - the next generation of Serving Our Almighty, Merciful Father. Thank You Jesus, for ALL YOU DO. In Your Name I pray. Amen
With or without tubes, he is beautiful! I pray for you and think about the three of you a million times a day. God continue to bless you according to His will and in His timing.
Love,
Patty
What a handsome boy. (:
c3 student
He is beautiful. Praise the Lord for His perfect, good, and holy will. Isaac is a living testimony to God's faithfulness to His children. You all are in our hearts and prayers.
What an amazing day! We are all so happy for the beautiful moments you shared today and we look forward to hearing about MANY more! God is so good to us!
We will join you in prayer on Thurs
we love you...
The Pattersons
I've never met you Isaac, but I am so proud of your courage and awed by the faith of your parents!
Michelle
Wow! He is so cute! Praise the Lord for two hours of breathing on his own! That in itself was an answer to prayer. Above all we are so thankful that he is here with us and and progressing forward. God is so faithful!
A few questions I had that you might address later in your blog: Does he cry? and do you hear him cry? Do his vocal chords work? Also, if he gets a trach now will he get to a point where the trach would be taken out?
We are still praying that baby Isaac will get to see his beautiful room soon.
God is good!! Isaac is soooo cute!! We thought about the extubation and prayed for you guys all day long. His color looks great. One step closer to bringing your sweet boy home, what wonderful news! We will continue to pray for the best for your family.
Jason and Ashley Bolduc
Isaac looks stronger and healthier than ever. Partly because he is incredibly adorable and partly because you can see God's healing hand upon him.
What a handsome little boy you have! He looks great! We are continuing to pray for sweet Isaac and both you and Jordan! May God continue to be your comfort and peace and touch you with the joy only our God can bring!
God bless!
Lindsay Jernigan
What a handsome little man! It is amazing to see how far the Lord has brought little Isaaic and to know that HE is not finished yet! We will continue to pray!
C&V
May you draw strength from your little boy, who is determined to not let go of life until God blesses him.
Tanya J.
May God guide you through the next phase of your journey. I remember when my daughter, Lois(miracle child-trisomy 13-will be 6 years old on May 4th), was in and out of the hospital during her early life; that not being able to hold her was one of the most trying aspects of the situation, especially when she got a little older and could reach for us. But, her smiles still helped and Isaac will most likely have those for you, too, as it is clear that God's strength is working in that brave little boy and while I know that the trach. issue is a disappointing one, it is not one without hope and now you're working towards bringing him home with you; which is a victory in Jesus and a major joke on Satan! God Bless you and all who pray for you! Cindy Sampson, Seffner, Fl.
Look at that hair! Such a sweet little boy. We'll be praying for all 3 of you on Thursday. Love, Adam and Nat
Jordan and Patience,
What a blessing to be able to see and kiss his beautiful face! I am so thankful that God has healed Isaac and I know that He will continue to heal your child.
Your family is always in our thoughts and prayers!
David and Erika
What a little beauty! All these baby steps forward are such a huge blessing and encouragement! Praises to God for bringing Isaac closer and closer to complete healing! How awesome HE so truly is!
The Papworths
Issac is absolutely precious, we pray for Issac throughout each day and I know God will be with him on Thursday cradling him in His arms. Thank you for sharing Issac and your faith has made me a much stronger Christian. We love you guys
"There goes my hero..."
Until I discovered the beautiful story that is Isaac Leino I had never had a hero. I have an awesome family. My wife and daughter are amazing, my mom and dad are awesome, but I never had someone that I looked at and said, "I want to be like you."
well now I do
I want to be like Isaac...
I want to fight for life.
I want to inspire people to seek after God's heart.
I want to encourage people, and give them hope.
I want to change lives through the power and awe of the Holy Spirt.
Once again, thank you Patience, Jordan and Isaac. I know God is going to continue to use this experience to shake the footholds of the earth to make way for His Kingdom...
"Kudos my hero leaving all the best...You know my hero, the one thats on"
- Foo Figthers
God Bless,
Josh Coyle
jcoyle@renci.org
Let His will be done!!! we are praying for your sweet, sweet boy.
I like the new pics of Isaac. I will be praying tomorrow morning while he is in surgery.
What handsome men you have Patience....LOVE the pics. He looks so peaceful with Jordan over him. We're all praying for success Thursday, keep posting those beautiful pics. Hugs and kisses to Baby Isaac. Rest mom and dad, Thurs is a big day. Thinking of you guys all the time.
what a sweet baby...his face is beautiful! God still has a plan for him. we're praying for you all!
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