Thursday, April 19, 2007


No news yet on the EEG results nor the cultures taken yesterday. We hope nothing grows in the cultures & our boy will be infection-free. Thankfully, Isaac has not had anymore behavioral quirks since Monday night. The EEG results will confirm whether it was in fact seizure activity or our boy simply throwing us for a loop once again.

Something major for us all to be praying about: if Isaac continues to thrive with the new vent settings, the medical team hopes to attempt extubation this Saturday! This would be a huge step for our son if successful. We're just thrilled to even be considering this. For this to successfully occur, Isaac's left vocal chord needs to be functioning again, his pharynx supporting itself (it was collapsed at the last attempt), & for his diaphragm to be able to pull in full breathes consistently on his own. Should this not be successful, two surgical options remain: placate the left side of his diaphragm or perform a tracheostomy.

Join us in praying for our sweet boy - that Saturday would hold a successful extubation & that he won't need to be re-intubated due to fatigue.


Gina Witcher / Runnermom4 said...

Jordan & Patience,

I will be fasting and praying for Isaac this Saturday. Praise the Lord that no more "strange behavior" has happened. I think God just wants to keep us all on our toes to keep praying and not forget He is not finished with Isaac, so..."Keep Praying!!"

Julie Miles said...


I'm so glad things are looking good for you right now! We're praying for continued strength and good health so you can be extubated on Saturday! Praise God for his miraculous work in healing the little celebrity!

Julie & Dan Miles

Anonymous said...

I want you to know we talked to some people who we meet and we were telling your story and they got an email to pray for him, what a small world, they are not active christians and I pray that this will creat a fire for God in them.
This happens all the time and I love it! We will pray and fast too for Mr. Man

Anonymous said...

I'm praying for you guys. Hope everything works out.


dianett said...

Jordan & Patience,

We will definately be praying for continued strength and a successful extubation on Saturday. Little Isaac is a FIGHTER, and with GOD on his side he will pull thru this all. Let's keep praying that our LORD JESUS CHRIST will continue strengthening and comforting him.

You guys continue to amaze me, remember that you guys have lots of people praying for you guys!

Thanks for taking the time to keep us posted.

God Bless You!

Patty Honeycutt said...

I'll be praying very hard for extubation, strengthened vocal cords, and health for Issac. I'm praying for his daddy and mama too!

Anonymous said...

Praying for good news on Saturday!

courtney said...

I am glad to hear that things are looking up for ya'll today. I will continue to pray for baby Isaac and his parents. I also spoke of his story to my coworkers and friend all day today and they are also praying for ya'll. God Bless.

The Figs said...

thank you, Father, because Your mercies are new each & every morning. You're giving us one more opportunity to start fresh. thank You, because you restore all things in Your perfect time & love.
i agree, with jordan, patience, their families & Your church worldwide, over Isaac. he will continue to thrive with the new vent settings. the complete medical team is submerged in the name of Jesus, name above all names, and their minds are clear, their bodies healthy and hands steady as the perform the extubation on saturday. isaac's left vocal chord will be fully functional and diaphragm will have the ability to pull full breaths for You. we fully know & understand that Your perfect will will be done. You are the everlasting God, You do not change. You do not sleep or slumber. in Jesus perfect name. Amen!

jordan & patience, thank you, once again for utilizing this wonderful medium to keep us updated, allowing us to peek into your lives as you travel this journey with God by your side & for trusting in us to agree with you in prayer. THANK YOU, many times over!!!!!

patience, i miss your help with vocals :-( can't wait to have you back & finally, get to love on your chunky monkey, isaac.

:-) jane

The Atkinson 6 said...

We will be praying hard for Saturday to be a great success and that Isaac will be able to take deep breaths on his own! What a wonderful miracle baby Isaac is!

We will also be praying that Isaac's unusual behavior was nothing at all.

We hope that you both are able to find rest and peace knowing that the Lord is with you and your little one!

David and Erika

Rhonda Garrett said...


My daughter & son-in-law, Dan & Julie Miles, were so glad to get to meet you and Isaac on Monday. Thank you for making time for them when you've got so much on your own mind and heart. It really encouraged them to actually see Isaac and to see you still doing well after this 'marathon'. I'll be praying the extubation is totally successful on Saturday.

Rhonda Garrett

Anonymous said...

Saturday is the March of Dimes Walk. I will be walking and I'll be thinking of and praying for Isaac.

anita said...

Praying, praying, praying...Loving on you all...

Joey & Lins said...

We will be joining in union with ya'll to be praying for sweet Isaac!

God Bless,
Lindsay Jernigan

Jacob said...

We will be praying for all that you mentioned!

Crystal Nichols said...

I am so glad that things are improving and a ray of sunshine is breaking through the clouds. Please know that you all remain in my thoughts and prayers.

2 Corin. 12:9, "My grace is sufficient for you, for my power is made perfect in weakness..."

kim roof said...

This is awesome news. Isaac proves with each and every hurdle that he is a fighter and that he will prevail through God's hands. I am continually praying for all that you need and a little extra. I am so inspired by your never failing faith and trust in our Lord.
Thank You so much for sharing your journey/testimony with us.

Anonymous said...

Praying and fasting on Saturday for our precious Isaac. God has much to do in this little one that we have yet to watch and claim victory over. Isaac is "a planting of the Lord, a display of HIS splendor" May we all continue to PRAISE HIS GLORIOUS NAME...HE is GOD ALMIGHTY !.
May God keep you ALL in HIS perfect peace.

Jenni said...

From one heart parent to another, extubation is such a wonderful thing!

Continuing prayers for a successful extubation on Saturday and that you may hold your little boy in your arms at that point!

Anonymous said...

Hi, it's Cindy Sampson, with the full trisomy 13 daughter, Lois, who will be 6 yers old (May 4th)--expected to reach 6 months at the most! Issac reminds me so much of she and her early days, though they deal with different issues; in that we'd get one thing cleared up, something else would arise, and we'd be given bleak prognoses and she'd bounce back stronger than ever. I think that God has given Issac the same type of resiliency and fighting ability! I'll pray for success on all of the current things you're dealing with; no seizures, extubation, etc. Lois eats totally by stomach feeding tube and retches at times. She also has a seizure disorder and takes medication for it but hasn't had one in 18 1/2 months! Her neurologist is amazed but I'm not as God made it possible. Issac looks so strong in his photos! I really feel that God will let him keep living and be an ongoing testimony. Prayers to all of you as I know how hard situations like this are on Mom & Dad especially, and all those involved. Love, Cindy Sampson, Seffner, Fl.

Anonymous said...

Jordan and Patience,
We have forwarded your blog to fellow Christians from other churches and they have forwarded to others...just want you both to know that there are so many praying for your precious son. We will now pray for complete and successful extubation with Isaac breathing on his own with no complications---God is the great physician--as we have experienced many times through Isaac's journey. We give God all the glory for all that He has done and will continue to do for Baby Isaac. We also continue to pray for your strength and courage. What a wonderful example you both are setting for others all around you. God bless. Rick and Shelia

Anonymous said...

Thanks so much for keeping us all up to date on Isaac's condition. You have certainly spoiled those of us who check on the three of you several times a day. We will coninue to pray for all THREE of you as you look forward to extibation on Sat. Please let all of Isaac's friends know how things are going this weekend.We look forward to a great day Saturday!!!
You have blessed the lives of many with your strong faith and wisdom. It is hard to remember that you two are so young. What a wonderful witness you are for our Lord! May God continue to bless the three of you in the days ahead.
We are praying and praying for all of you!!!

Anonymous said...

We will pray that extubation is sucessful. God is working mircles with Isaac and we look forward to meeting your little guy in the near future.

Many Blessings,
The Tilson's

Anonymous said...

Praying for you this Sat.
Love you...
The Pattersons

Gina Witcher / Runnermom4 said...

Heavenly Father,

Today is a big day for Baby Isaac. Protect him, revive what has not worked in his body. Fill the room with your presence.

We pray for three things today Father:

Renew Isaac's vocal chord to function as you created the human body to do. By your healing hand give strenth to his pharynx so it can support itself, and give strenth to his diaphragm to be able to pull in full breathes consistently on his own.

We love you Lord and thank you for what you are going to do today!