It has been several days since our last post with good reason: instead of sitting at bedside writing blogs & reading stories, we've been holding our sweet boy!!! How wonderful to spend hours rocking Isaac in our arms, reading him stories & kissing his precious face. Isaac spends the time looking round his room from a new perspective & then drifts off into deep, peaceful sleep. However, he always becomes bright-eyed whenever he hears Jordan's voice. He certainly loves his Daddy!
Since Wednesday, Isaac has successfully weaned from both blood pressure meds (epinepherine & dopamine). We've been able to cut his vent support rate in half & begin feeding him from his G-tube slowly. So far, he's had difficulty with feeds, spitting up several times last night. So we'll start over slowly & see if he'll tolerate them better with time. The edema continues to come off slowly. So we're making some progress. Now, our focus is establishing nutrition through stomach feeds & weaning from the vent & sedation meds.
What a joy to still have our sweet boy here with us! As he's been more awake lately & in our arms, we fall more in love with him each day. More details to come later today or tomorrow. But for now, time to go back to holding Isaac!
To all those with a mother's heart, with or without children of their own: thank you for the love you bring to this world. Happy Mother's Day!
14 comments:
Hey! Happy mothers day! Were still continuing to pray for you guys!
WE love you!
That is the most precious picture we could have seen this mother's day. Praise to our God is exploding from our hearts this mother's day.
Praise God for all the progress! You are in our prayers all day every day. Even our little girl Pheilicia (age 3) prayed today at lunch that God would heal Baby Isaac and that he would get to go home.
Our God is so worthy of so much more praise than we could ever give.
Thank You! Thank You! Thank You Lord! We Love You so much!!
Thank you for the beautiful Mother's Day picture. That is as sweet as it gets! And even more so knowing the history.
Thank you Lord.
What a beautiful picture... to see you holding Issac... especially after so long of not being able to hold him.
You all are in our thoughts and prayers...
From one mom to the other.. I wanted to wish you a Happy Mother's Day!!!
We are so happy for you!
It won't be long before you are bringing him to church!
God is good all the time, all the time God is good!
We love you guys!
Happy Mothers Day!!!
What wonderful news! We'd been hoping that the gap in blogging was a case of 'no news is good news' ... and how! Isaac's looking good, and we're so glad you've been able to get lots of cuddles and kisses in! Isn't it just the best feeling in the world when you can hold your baby after not being able to?!? It isn't Mother's Day here in the UK (it was back in March!) but wishing you a VERY happy Mother's Day stateside! We are still remembering you in prayer many times a day, and trust that Isaac will start to hold his feed down better soon. Will keep checking back for more of those wonderful pictures!
With love and support from a fellow HLHS mum,
Alison xxx
http://charlieturner.blogspot.com
What a blessing for you this Mother's Day. We wish you a magnificent day, and pray that the progress continues.
Happy Mothers Day!
You and Jordan and Baby Isaac are in our thoughts an prayers everyday
HAPPY MOTHERS DAY PATIENCE!!!
I cried happy tears for you at the sight of you holding your precious baby. I have a newborn, as well, and I know how special these moments are for me...I imagine they are spectacular for you and I praise God for this and Isaac's improvement!! What an encouragement! God Bless you guys!
OUR GOD IS AN AWESOME GOD
OUR GOD IS FAITHFUL AND JUST ALWAYS TO US...
I AM ONE OF THE HAPPIEST MOM IN THIS WORLD SEEING YOU HOLDING YOUR ANGEL...PRAISE BE TO GOD
ALL THE GLORY IS FROM GOD ALWAYS
HAPPY MOTHER'S DAY PATIENCE, YOU ARE INCREDIBLE MOM
There is nothing more precious to witness than the deep, loving bond between a parent and child. Thank you both for sharing such a precious moment like this with the rest of us. My heart goes out to you all.
I am so very glad to hear the report on Isaac's status. The battle for Isaac's life and healing was fierce, however, God is ALWAYS the victor when His people unite in prayer. "The prayer of a righteous man availeth much" and Isaac's success is evidence of that.
I'm so happy for you all. It's just a matter of time before this beautiful gift from God is able to sleep soundly in his crib, be fed in his high chair, and speak that precious language baby's have - lol.
Rebecca VanderWerff
Praise GOD!! I am so happy you have not written us!! The Lord is so good!!!!!
Brandy Crocker
I thank the Lord for giving you such strength. You have had quite a time leading up to this Mothers Day. Congratulations and God Bless you!
-Val&Clint
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