Isaac's resting comfortably in his PICU bed & to look at him, you'd never know anything had been wrong. After a frightening seizure episode & several blood labs, it was determined that Isaac had become extremely dehydrated - most likely a result from sweating his little heart out over the past week...he sweats like a grown man when he's mad! Thankfully, Benny was able to gain IV access to give Isaac fluids & meds. An echocardiogram revealed thickening of the heart muscle, a result of working hard to function. So the gameplan at this point is to successfully rehydrate Isaac, stabilize his sodium levels, & adjust his heart medication to assist his heart further.
What a day. At first, we were very concerned for Isaac's health & frustrated by the awful timing of it all. We'd finally come to the point where Isaac was doing well, nursing arranged, & work all in order. It just didn't seem fair! But as the day progressed, another perspective came into view. Thankfully, the call had come while Jordan & I were still home. Thankfully, Isaac was already at the hospital when his seizure hit. And thankfully, it wasn't worse...as it very well could have been! God knew we needed to be at UNC to learn about his heart thickening & at the end of the day, our sweet boy is still here.
Hopefully, we'll only be in Chapel Hill for another day or so. Now we know more of how to pray effectively for Isaac - that he would maintain hydration, safe electrolyte levels, & for his heart - that the muscle would work efficiently & go back to normal size. We see the cardiologist next Thursday to learn when he'll need the next surgery, most likely within the next month or so. Until then, we hold our sweet boy close, bathe him in prayer, & that God for His love & never-ending faithfulness.