Saturday night bore a heavy blow. What began as a trip to the hospital for a sodium imbalance took a severe turn that no one saw coming. Our Isaac needs a supernatural miracle.
Finding our boy dehydrated, he was given IV fluids to correct his fluid balance. But once this occurred, he spend two days with oxygen sats in the 40's & 50's. Through tests & observation, we ruled out the respiratory system as being the cause of this. Dr. Blair Robinson, Isaac's cardiologist, did a bedside echocardiogram to fully assess his heart. What he found took us by surprise & has brought a great heaviness to our hearts.
As you know, Isaac has one ventricle doing the job of two, pumping blood to both the lungs & the body. The strain of bearing the load for the whole heart has caused the heart muscle to thicken considerably, making it difficult for his heart to fully fill. Also, the pulmonary artery (from the heart to the lungs) is a third the size as it should be. This significanly limits the amount of blood his heart can pump to the lungs to be oxygenated. His heart is working very hard to function & is not growing as it should.
Bottom line - as it is right now, Isaac does not qualify for either the next stage of surgery nor a heart transplant. His body would not survive either. His current status leaves him without options &, if nothing changes, only a month or two left to live.
We need a miracle! There is nothing medicine can do to help him. We are doing our best to give him the best nutrition & medicines to optimize his chances to grow. But as things are now, his heart is burning all those growing calories to simply function day to day. If ever there was a time for prayer, this is the time!
Our hearts grieve with this news. Sadness was written on the doctors' faces as they conveyed the reality of Isaac's situation. Thankfully, he's back home now with family & familiar surroundings. Whatever God choses, we find our boy in a win/win situation. If God intervenes in a supernatural way & heals his heart - either completely or enough to have the next surgery - then He will be glorified & Isaac will remain with us! Our hearts long for this! But should God decide to take him home, then we rejoice that Isaac will be with Jesus, face to face - free of tubes & tests & struggles. He won't know hurt or disappointment or limits. But still, we pray for the miracle!!!